The death of a child is every parent's greatest fear, and it is made all the more tragic when that loss is at the hands of the very doctors we trust to mend our bodies and improve our lives. This was the case for one family who entrusted the care of their only son, an 8-year-old with Wolf-Parkinson-White Syndrome (WPW) to a cardiac electrophysiology team thinking they would provide a cure.
WPW is a condition where the heart has one or more accessory nerve pathways which can interfere with the heart's regular rhythm and produce what is called supraventricular tachycardia, an extremely fast heartbeat which does not allow the heart to pump blood effectively. A person with WPW may not have any symptoms at all, or have them very infrequently. Those who do, typically experience palpitations, shortness of breath, chest pain or tightness, dizziness, light-headedness or even fainting during an episode. The condition carries an excellent prognosis, often resolving spontaneously in children, though very rarely complications can result in sudden death.
This fact was pressed upon the boy's parents, leading them to believe eradication of the accessory pathway through a catheter ablation procedure was vital to his well-being. While the procedure is generally safe, being performed on thousands of adults and children world-wide, it does carry risks which were also downplayed to the boy's parents.
As WPW affects people differently, a risk assessment should be performed before deciding to undergo the ablation procedure, as it will not necessarily provide more benefit without outweighing surgery related risk. Assessment and treatment are performed in an electrophysiology laboratory where catheters are introduced into both femoral veins and the left subclavian vein through punctures in the patient's groin and neck. Electrical wires are then placed through the catheters into the heart and are connected to devices that record the electrical pulses of the heart. These wires can also be used to stimulate the heart to detect accessory pathways and to perform the actual cardiac ablation procedure to eradicate those pathways.
The two main possible complications with the procedure are perforation of a blood vessel leading to hemorrhage and systemic bleeding, or perforation of the heart or its vasculature resulting in bleeding into the lining surrounding the heart called the pericardial sac. While both of these instances are eminently life threatening, they are also easily diagnosable and can be immediately treated with the tools readily available within the electrophysiology lab.
The key to preventing catastrophic events in this procedure is to very closely monitor the patient's vital signs and to act without hesitation if any abnormalities appear. Unfortunately, the family in this case was not informed of these possible complications, and the surgical team's negligence only worsened from there. During the procedure, as they began to remove the catheters, the boy's heart rate became very elevated, along with severely low blood pressure and low blood oxygen saturation. Rather than follow the standard of care and immediately check for perforation, the team seemingly ignored these obvious signs of trouble and began to move him to recovery.
To add insult, they called his parents to say that he was in recovery and the procedure went well, and so reassured that their son was fine, they went to the hospital cafeteria. They returned an hour later to hear that there was a problem, their son was on a respirator and was being taken back into surgery to fix a hole in his heart. A puncture had caused his pericardial sac to fill with blood, putting too much pressure on his heart for it to pump effectively. Post-operatively, he was put in the pediatric ICU and was in critical condition. The next day, his parents were informed that he was brain dead and not likely to survive, and they made the difficult decision to remove his life support.
The family will never be functional again after the sudden devastating blow of losing their child, an event they never had to experience if the doctors had followed the standard of care and either never performed the unnecessary procedure, or at least acted appropriately in the operating room.
We were able to obtain a high six figure settlement for this family in a very conservative county.